The AASPIRE practice-based guidelines for the inclusion of autistic adults in research as co-researchers and study participants

As interest in autism in adulthood grows, so does the need for methods to promote the inclusion of autistic adults in research. Our objective was to create practice-based guidelines for the inclusion of autistic adults, both as research team members and as study participants. We conducted an institutional ethnography of three closely related research partnerships that used participatory methods with autistic adults over the years 2006-2018. We used an iterative approach which combined discussions with community and academic partners and artifact review. Guidelines to promote the inclusion of autistic adults as co-researchers focus on being transparent about partnership goals, clearly defining roles and…

• UD
  U.S. Department of Veterans Affairs

  Award: UL1 RR024140
• NI
  National Institutes of Health

  Awards: RR024140, UL1 RR024140
• CF
  Centers for Disease Control and Prevention

  Award: RTOI 1999
• OC
  Oregon Clinical and Translational Research Institute

  Awards: RR024140, UL1 RR024140
• NI
  National Institute of Mental Health

  Awards: R34MH111536, R34MH092503, R21MH112038
• NI
  National Institute of Child Health and Human Development

  Award: R21HD0788300
• NC
  National Center for Research Resources

  Award: UL1 RR024140