Autism in England: assessing underdiagnosis in a population-based cohort study of prospectively collected primary care data
Department of Health and Social Care · University College London · +9 more institutions
Abstract
Autism has long been viewed as a paediatric condition, meaning that many autistic adults missed out on a diagnosis as children when autism was little known. We estimated numbers of diagnosed and undiagnosed autistic people in England, and examined how diagnostic rates differed by socio-demographic factors.
This population-based cohort study of prospectively collected primary care data from IQVIA Medical Research Data (IMRD) compared the prevalence of diagnosed autism to community prevalence to estimate underdiagnosis. 602,433 individuals registered at an English primary care practice in 2018 and 5,586,100 individuals registered between 2000 and 2018 were included.
Citation impact
- FWCI
- 30.00
- Percentile
- 100%
- References
- 28
Authors
13- EOElizabeth O’Nions
Department of Health and Social Care, University College London
- IPIrene Petersen
The Royal Free Hospital, Roland Hill (United Kingdom), University College London
- JEJoshua E. J. Buckman
Department of Health and Social Care, St Pancras Hospital, University College London, Camden and Islington NHS Foundation Trust
- RARebecca A. Charlton
Goldsmiths University of London
- CCClaudia Cooper
Queen Mary University of London
Topics & keywords
- Autism
- Medicine
- Population
- Cohort
- Incidence (geometry)
- Pediatrics
- Medical diagnosis
- Demography